Major NDIS Changes May Be Coming - Have Your Say On the Draft NDIS Bill!

We urgently need to hear from Neurodivergent families.

If you are a Neurodivergent parent, Disabled parent, or raising a Neurodivergent child who uses, needs, or may need the NDIS, this survey is for you.

This includes ND parents who are NDIS participants

and

Parents and carers of ND children under 18 who are NDIS participants.

The Government has introduced a draft NDIS Bill that will be debated in Parliament soon.

The 2026 draft NDIS Bill proposes important changes that may:

1. Change how the NDIS decides who qualifies for support

2. Make it harder to ask for your plan or your child's plan to be changed when circumstances change

3. Expect parents, carers, and families to provide more support for their child themselves

4. Allow some NDIA decisions to be made using automated computer systems or AI

5. Leave some important rules about how the scheme works to be decided later, instead of being written into the law now

6. Change how early support for children is assessed

7. Narrow what supports the NDIS will pay for

8. Allow plans to be suspended in some situations if a participant cannot be contacted for 90 days

9. Give the Minister the power to cut off or reduce people's NDIS funding even if the NDIA say they need it.

We want to tell Senators and MPs what you think about these changes.

This takes 2 to 3 minutes.

Short answers are completely fine. :)

We have added the option for you to record a voice note to go with this survey. This is optional. Before recording, please read through the questions and think about what you want to say. You can only record for five (5) minutes. We want you to be able to make the most of that time frame.

1. Which state or territory do you live in?

2a. What is your federal electorate? If you are not sure, please enter your postcode instead. Example: Macquarie OR 2785

2b. Are you or your child(ren):

2c. Please indicate your usual yearly household income:

3. Overall, how do you feel about the NDIS changes the Federal government wants to make? These were listed at the top of the survey.

4. Would you like more information regarding the proposed changes to the NDIS? (This question is not mandatory)

5. Which FOUR proposed changes concern you most?

5a. If you chose Something Else for question 5, please write what Something Else is below:

5c. This question is for Aboriginal and Torres Strait Islander families. If the NDIS expected your family or community to provide more disability support instead of funded supports, what practical impacts would that have on your child, family, kinship responsibilities, safety, wellbeing, or ability to stay connected to culture and community?

5d. For Aboriginal and Torres Strait Islander families: If you prefer, you can record your thoughts on the above question as a voice note. Hit the record button below. The recording will stop after 5 minutes. :)

6a. If these changes affected your family, what would be the most likely impact? (select all that apply)

6a (continued) Can you describe what this would look like for your child, your family and yourself? Dot points or even a few words is fine.

6b. If these changes caused additional relationship stressors, which one/s would be affected? (select all that apply)

Other

7a. Are you concerned that changes to how support needs are assessed could make it harder for some neurodivergent families to qualify for support?

7b. How does individualised support help your child, you, and your family in everyday life? If you or your child need the NDIS in the future, how do you think it may help day to day?

8. Have your family’s support needs ever changed suddenly? Examples include but are not limited to: -burnout -school refusal -mental health crisis -family breakdown -changing support needs

9. How comfortable are you with automated computer systems or AI being involved in disability support decisions?

10. How comfortable are you with Parliament voting on this Bill if many important scheme rules will be added after it has been made law? This means large parts of the legislation and rules Australians have to follow will be decided by the Minister, not by the Parliament. You won't know what they are until later. It will be much harder for families to have their say on what those rules are through their MPs and Senators.

11. Is there anything else you would like Senators to understand about your family’s experience or views on these proposed changes?

12. Can we quote your response?

13. Would you like help to contact your Senators?

14. What is your role/ how do you identify? (select all that apply)

Optional Contact Details:

First NameLast Name

Email/Phone number

We welcome donations from the community if you would like to make one. This helps us sustain our work for the Neurodivergent community and families. There is no pressure or expectation to donate. We understand everyone is doing it tough. If you can't donate, we would love it if you can share this survey to two friends :)

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